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Organisations We Are Members Of:

Cancer52

Cancer52 has grown from an initial group brought together at the request of the National Cancer Director, Mike Richards to input into the Cancer Reform Strategy.

We are so named because 52% of cancer deaths in the UK are from the less common cancers (i.e. excluding the 'big four': bowel, breast, lung and prostate), although in 2010 this proportion increased to 53%.

Cancer52 is an alliance of more than 50 organisations working to address the inequalities that exist in policy, services and research into the less common cancers and to improve outcomes for patients with these highly challenging diseases. Most who work for the organisation give their time and resources on a voluntary basis.

Our members are all organisations concerned with the less common cancers. Many of our members are very small: over half have an annual income below £200,000; many exist on incomes of only hundreds of pounds a year.

www.cancer52.org.uk

Rarer Cancers Foundation

There are hundreds of different types of cancer, and research suggests that between 30% and 50% of all cancer cases could be classified as 'rarer'. They fall outside the more common and highly publicised cancers such as colon, breast, lung and prostate.

The Rarer Cancers Foundation exists to ensure that people with rarer cancers have access to the best services and outcomes.

  • We provide up to date information on rarer cancers and treatment options available
  • We enable supportive networking for patients, carers and clinicians
  • We act as a gateway, directing patients to further avenues of support and information, such as patient groups or charities
  • We raise awareness about the less common cancers
  • We give a voice to 'forgotten' cancers
  • We produce information literature for both patients and healthcare professionals
  • We campaign for change at government level to secure the best possible patient journey for people living with rarer cancers
www.rarercancers.org.uk

Charities We Support:

Published with the kind permission of:

Bone Cancer Research Trust

Background

Bone Cancer Research Trust (BCRT) was founded in 2004 by a group of bereaved parents of young bone cancer suffers. At that time, there was very little information or support relating to primary bone cancer and funding for research was none existent. In 2006, under the guidance of Professor Ian Lewis, Consultant Paediatrician and Adolescent Oncologist at St James University Hospital in Leeds, BCRT was registered as a charity. Together, the bereaved families had raised a staggering £176,000 which was allocated to the charity to fund the very first pieces of research.

Today, BCRT has four primary objectives:

  • Research - working towards improving outcomes of this devastating cancer which affects children, teenagers and young people
  • Raising awareness of primary bone cancers through a number of initiatives
  • Information - to become the leading, reliable source for information on bone cancers in particular, osteosarcoma and Ewing's sarcoma
  • Support - providing vital information and links to patients and families through our team of 'support givers'
www.bcrt.org.uk

Sarcoma UK

Sarcoma UK is the main charity in the UK dealing with all types of sarcoma. It funds research into sarcoma through an annual peer reviewed scientific research grants programme, and provides information and support for anyone affected by sarcoma through publications, web information, and local and online groups.

www.sarcoma.org.uk

Guy Francis Bone Cancer Research Fund

Founded by teenage Osteosarcoma patient Guy Francis shortly before his death in 2002, the Fund asks Why? primary bone cancer is Britain's Number 1 Teenage and Young Adult Cancer.

The Why Guy? campaign questions the Causes? Lifestyle? Environment? Detection? Treatment? & Survival? of bone cancer in Teenagers & Young Adults.

Guy's Fund raises money for vital medical and social research into Osteosarcoma and Ewing's Sarcoma. Through campaigning and advocacy, it seeks to advance awareness and education amongst the general public and healthcare professionals. It encourages patients to ask for expert advice, which may include using its S.I.G.N.S.™ Patient Checklist Initiative, so reducing the risk to their long-term survival due to delay or misdiagnosis.

Through its "Patient Voice" programme, it also lobbies Government and Agencies on patients' rights, national research funding inadequacies and important welfare reform issues for young people undergoing long term treatment programmes which may result in permanent physical disability.

www.gfbonecancer.org.uk

Teenage Cancer Trust

There’s never a good time to get cancer, but for a teenager the timing seems particularly cruel. Young people can get some of the most rare and aggressive forms of cancer. Their rapidly changing bodies can work against them, enabling the cancer to grow faster. The emotional upheaval of adolescence can make a cancer diagnosis even harder to cope with.

Teenage Cancer Trust is the only UK charity dedicated to improving the quality of life and chances of survival for the six young people aged between 13 and 24 diagnosed with cancer every day. We know that what they do need is to be treated together, by teenage cancer experts, in an environment tailored for them.

Teenage Cancer Trust doesn’t believe teenagers should stop being teenagers, just because we have cancer. So life in a Teenage Cancer Trust unit is intended to be as close to normal as possible. Teenage Cancer Trust treats young people as individuals first, cancer patients second. We know that providing a place that feels a bit more ‘normal’ helps young people cope with the devastation and chaos of cancer and its grueling treatments. So our units are developed to provide the best possible environment for patients, their families and those providing their treatment and care.

Our units are designed to feel like a home from home, so young people with cancer are able to keep their lives on track. In doing this, the role of a Teenage Cancer Trust unit goes beyond medical treatment, extending to everything they have to cope with.

We also aim to educate every young person in the UK about cancer, cancer prevention and healthy living, empowering them to take control of their own health. We deliver free talks to schools and colleges, and provide free web based and downloadable resources. We also run public awareness campaigns on the signs and symptoms of cancer and a summer skin cancer campaign.

www.teenagecancertrust.org

Cancer Research UK

  • Cancer Research UK is the world’s leading cancer charity dedicated to saving lives through research
  • The charity’s pioneering work into the prevention, diagnosis and treatment of cancer has helped save millions of lives.
  • Cancer Research UK receives no government funding for its life-saving research. Every step it makes towards beating cancer relies on every pound donated.
  • Cancer Research UK has been at the heart of the progress that has already seen survival rates in the UK double in the last forty years.
  • Cancer Research UK supports research into all aspects of cancer through the work of over 4,000 scientists, doctors and nurses.
  • Together with its partners and supporters, Cancer Research UK's vision is to bring forward the day when all cancers are cured.
www.cancerresearchuk.org

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© 2012, Bone Cancer Awareness Trust
Registered charity number: 1147133